Unacceptable delays of preventative mastectomies create a ticking time bomb in women with high genetic risk of breast cancer.
Breast Cancer Network Australia
Bi-partisan federal support to include review of priority access to critical surgery.
A united and unprecedented position statement from Breast Surgeons of Australia and New Zealand (BreastSurgANZ) and Breast Cancer Network Australia (BCNA) will be made to the Federal Government to improve access for women wanting preventative mastectomies due to high genetic risk.
5-10% of breast cancer diagnoses each year are a result of genetic mutations, which are estimated to cost the Australian healthcare system up to $79 million.
Some women with an inherited high risk of breast cancer have over a 70% chance of developing the disease. A prophylactic bilateral mastectomy removes both breasts to reduce their risk by at least 95% , but risk reducing surgeries are not consistently classified as semi-urgent elective surgeries in public health services. Some of those wanting a prophylactic mastectomy are being forced to wait up to 5 years to have this surgery.
BCNA Director of Policy, Advocacy and Support Services Vicki Durston says those with inherited risk factors feel like a ticking time bomb but are repeatedly told by hospitals that they are not a priority. “Knowledge of risk is empowering but it becomes a feeling of being powerless when forced to spend years on public wait lists for risk reducing surgery. It’s a constant state of fear compounded by lack of transparency regarding timelines and the reality is some will receive a breast cancer diagnosis whilst waiting.”
BCNA reports that many women feel they have little choice but to enter the private system to safeguard their health. “Out of pocket costs can be up to $50,000, women are drawing on their superannuation or borrowing money to buy themselves protection which is not a viable option for most.”
Federal Health Minister Mark Butler and Shadow Minister Senator Anne Ruston will today, meet the Australian Access to Breast Reconstruction Collaborative Group (AABRCG) that includes BCNA to formally support their call for prioritising access to prophylactic mastectomy for people with inherited high risks of breast cancer.
Recommendations include a complete review of the current National Elective Surgery Urgency Categorisation guideline established in 2015 that surgeons, State and Territories use to prioritize surgeries in the public health system.
Currently prophylactic mastectomy is not included in the guideline and as a result are treated as a category 3, non-urgent procedure.
Dr Melanie Walker, Chair of the AABRCG and President of BreastSurgANZ says the society has endorsed the position statement amid concerns of persistent delays and inconsistencies across a non-legislated framework. “The guidelines have not kept pace with the rapid evolution of prevention strategies in the surgical space, resulting in patients waiting as long as five years”. Dr Walker admits the delays fall well short of what is considered timely access to this critical intervention. “Prophylactic mastectomies not only spare individuals from enduring cancer treatments such as chemotherapy and radiation but also reduce long-term healthcare costs, including ongoing surveillance. Preventative surgery is often quicker and less resource-intensive than cancer treatment, allowing us to free up surgical lists and optimise system efficiency throughout the entire health system.”
The AABRCG is also proposing the Federal Government lead the establishment of a national, standardised system for collecting and reporting on prophylactic mastectomy data related to inherited breast cancer risk to help inform future policy.
ENDS
About the Australian Access to Breast Reconstruction Collaborative Group (AABRCG)
The Australian Access to Breast Reconstruction Collaborative Group (AABRCG) is dedicated to advocating for improved access to breast reconstruction services across Australia by bringing together primary care expertise and cancer policy and research. The group was established in 2020 as a partnership between Breast Surgeons of Australia and New Zealand (BreastSurgANZ), the Australian Society of Plastic Surgeons (ASPS), and Breast Cancer Network Australia (BCNA).
For more information go to www.bcna.org.au
Media enquiries: Kellie Curtain M: 0412339690. kcurtain@bcna.org.au
Key Facts:
* Women with inherited high risk of breast cancer are waiting up to 5 years for preventative surgery in public system
*Federal bi-partisan to support review of priority access to this critical surgey
*Some women with nherited high risk of breast cancer have over a 70% chance of developing the disease.
*Prophylactic mastectomy of both breasts reduces risk to less than 5%.
About us:
Breast Cancer Network Australia (BCNA) is the peak national organisation for Australians affected by breast cancer, and consists of a network of more than 175,000 individual members. BCNA supports, informs, represents and connects Australians affected by breast cancer and works to ensure that all Australians affected by breast cancer receive the very best care, treatment and support appropriate to their individual needs.
Contact details:
Case studies are available
Available for interview:
BCNA, Director of Policy, Advocacy and Support Services Vicki Durston
Chair of the AABRCG and President of BreastSurgANZ, Dr Melanie Walker
Media enquiries:
Kellie Curtain M: 0412339690.
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Breast Cancer Network Australia. Media Release
